We raise money to help advance ALS research as well as bridge the gap between service care providers and ALS patients in the Baltimore / Washington D.C. communities.
The 4 Pete’s Sake ALS Foundation was formed in 2009 in honor of Pete Catucci who also had ALS. While Pete was alive, he personally assisted PALS (Person(s) with ALS) who were in need and found it tremendously rewarding. At that time, he realized there was a big gap between patient services provided by great organizations like the ALS Association, and the individual needs of patients.Read More
One of the things that prompted our desire to create the foundation was because of a topic Pete felt very strongly about, that he felt people battling ALS do not have a voice. Unfortunately, we found that statement to be true on two fronts:
The foundation was created with the mission statement "We are your Voice” with the hopes that we could help advance research endeavors as well as assist ALS patients in the Baltimore/Washington D.C. communities.
The foundation has a strong desire to split the money raised between ALS research and local patient care. During the last 7 years we have supported ALSTDI in furthering research development and the ALS Association which facilitates finding local patients in need of care support. Our foundation has the flexibility that many do not and we often help patients that have nowhere else to turn to for support.
2014 was a momentous year for our foundation as we surpassed $250,000 in money raised from our primary fundraiser event, an annual golf tournament which is held on the last Friday of April every year in Queenstown, Maryland. During this period we have forged relationships with many large national organizations such as: Verizon, Communication Workers of America (CWA), IBEW, UFCW, GoDaddy.com, Walt Disney, as well as many other companies inspired by our cause.
Highlighting some of the distributions what were made from our foundation towards patient care and support:
We will continue to further advance ALS awareness and hopefully be a small part in a larger effort to someday find a cure for this horrific disease. As we saw from the “Ice Bucket Challenge” little things can have a huge impact!
The foundation has a strong desire to split the money raised between ALS research and local patient care. During the last 7 years we have supported ALSTDI in furthering research development and the ALS Association which facilitates finding local patients in need of care support.
"With the support from the 4 Pete’s Sake ALS Foundation, the ALS Therapy Development Institute has been able to fund the completion of Phase 2a clinical trial of a potential treatment and launch the first of its kind Precision Medicine Program in ALS."
"As a Patient Care Services Coordinator for The ALS Association DC/MD/VA Chapter, the 4 Pete’s Sake ALS Foundation has been an invaluable resource for me in assisting people with ALS and their families. Having ALS can cost up to $200,000 which is a tremendous financial and emotional burden on the patients themselves and their families. The 4 Pete’s Sake ALS Foundation has frequently “filled in the gaps” to provide things essential to quality of life but for which insurance will not pay and for which there are no other available resources."